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I officially organized all my RA-related medical stuff into a binder today. Tabs for Tests, Imaging, MD Notes, Medications and Primary Care Info. Did I forget anything important? Not too many papers right now, but it’s better than a crazy messy folder full of confusing stuff. I know I’ll be glad I did this.

And tomorrow is the appointment with the second Rheumatologist. Read through the recent X-Ray report and Googled some terms so I’m prepared. Gathering my questions together. Turns out maybe hubby can go with me … but we’re not sure. Really hoping I like this guy …

Plus we found out that the nearby teaching hospital will be on our new insurance as of Jan. 2010. So I will have the option of that Rheumatology practice again … kinda wish I hadn’t cancelled the late-December appointment I had with them. Oh well …


  1. Wren
    Dec 1, 2009

    Getting everything gathered up and organized in one easy-to-access place is really smart. I haven’t done it myself, though I’m always telling myself I will.

    I hope your appointment with the new doc goes well and that you like his personality, his skill and his approach. Bedside manner doesn’t hurt, either. Here’s wishing you the very best of luck.

  2. carlascorner
    Dec 2, 2009

    Luscious: Good luck with everything. I was diagnosed about 18 mos ago and the information coming at you can be pretty overwhelming, but it sounds like you’ve got a good plan to “get a handle” on things. As Wren pointed out, one of the really key things is to find a rheumatologist that you like — one that respects you both as a patient and as a person. Please keep us posted on your progress.

  3. thislusciousra
    Dec 6, 2009

    Carla and Wren – Thanks for your encouragement. See my new post about the Rheumy appointment I had this week. He’s a gem!

    And it was quite helpful to have the organized binder. Have a feeling if I don’t do it now, it will just be too overwhelming when there are more papers to organize. I even ended up giving the doc a few things to copy for his file. LOL!

  4. tmari76
    Dec 16, 2009

    That’s a really cool idea! I work for a hospital and they keep encouraging us, through our wellness team, to start an online “medical record”. The information can be accessed only by you, as the patient, and then by the physicians you designate. Even though I am an internet junkie and big advocate of keeping up with your own medical information…I’m still on the fence about putting all of that information online!! So, I’m really digging your idea of keeping a binder of my information!! (Ha, even the doubts from someone who is in the medical record/health information field and I have worked at many facilities who have electronic medical records now…I KNOW the information is secure when it’s basis is the medical facility…I just have my doubts about using outside websites to “store” my information!) 🙂

  5. thislusciousra
    Dec 19, 2009

    Tmari76 — Being a little “old-school” sometimes works just fine. I’m sure the online stuff is secure, but about a year ago my primary care physician’s office had a laptop with patient information (including mine) stolen. Even though it seems nothing ever impacted me negatively, I guess I’m a little more hesitant.

    Plus when I was at the Rheumy’s I could just pull something out and say … here’s what you need. He made a copy and we were set to go! ;->

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