It’s been nearly a year since my RA diagnosis, and that timeline has been on my mind so much lately. There have been many ups and downs, but generally my sense of the prognosis is a positive one.
I take many more medicines than this time last year. And yet they are making a tremendous difference in my life.
I take many fewer naps, and have been able to be more active in my life. While naps are kind of fun, it’s better when they are a choice and not a necessity.
I hope that (for now) I’ve learned a lot more about where my limits are. I work less, I rest actively more. I have enjoyed and treasured slowing down because that’s brought me time spent with family.
I spend some time on Twitter with a terrific group of folks – most of whom are also living with RA or another chronic / autoimmune illness. This makes me feel empowered and part of a tribe that genuinely cares about each other.
I’ve learned that asking for help is good. And that toughing it out can lead to some serious downsides – typically not worth refusing to ask for help.
Despite healthcare reform, I am more concerned about my husband’s ability to retire since it is his job that provides my health insurance. It makes me want to find time to be politically active … although we’ll see how that fits in my life’s priorities.
I am so grateful for the good things in life – both those I can do easily, and those which take more effort. It’s all luscious!Read More
If you have RA, you probably think I’m crazy to put luscious and RA in the same phrase. And yet, there they are. Here’s why. One of my favorite artists and writers is Brian Andreas, who creates the Story People. Several months ago, I saw something he had written and it has stuck with me. Here it is:
I’m beginning to think peace is something we made up
to keep us from being satisfied with all this luscious chaos
So, my new RA diagnosis feels like I’ve been thrown into chaos. And sometimes I think chaos is what I need to shake up the “same old, same old.” Certainly describes how the last several months have been for me.
I hope you’ll join me for This Luscious RA voyage.Read More